41. Sarah Yourman - Big Air A young girl with cystic fibrosis and Diabetes that loves competitive skiing, mogul runs, and gymnastics. http://www.sarahyourman.com/

42. Norma Kennedy Plourde's Home Page cystic fibrosis, Genealogy, Kennedy in particular, and other family lines, Rheumatoid Arthritis, and Lac Baker, New Brunswick. English/Fran§ais. http://personal.nbnet.nb.ca/normap/

Norma Kennedy Plourde Home Page Search my site: Cystic Fibrosis (Updated Apr. 6, 2003) Lac Baker: plus d'information Photo of where I live: Lac Baker (Added Sept. 1, 1998) ASNO Club de Motoneige/Snowmobile Club Odds and Ends: things that I find handy (Updated Nov. 29, 2002) Fibrose Kystique Genealogy (Updated Mar. 26, 2003) Computer and Internet Hints and Tips Trucs d'ordinateur et d'internet (Updated May 17, 2002) Rheumatoid Arthritis (Updated May 10, 2002) Fun Stuff (Updated Mar. 20, 2003) Plaisanteries ChangeDetection.com Use this to be notified when one of my pages changes (Updated July 18, 2002) Games (Updated Aug. 30, 2002) Web pages of people I know Jennifer Plourde, my daughter She made a page of drink recipes. (Added Feb. 8, 2002) Keven Plourde, my nephew He is into cars. (Added July 16, 2001) Tina Plourde, ma belle-soeur She has uploaded lots of family pictures. (Added Sept. 7, 2001) Paul-Anthony, mon neveu Une photo de lui avec son équipe de baseball: L'Élite Pee-Wee "A" de Val-Bélair/Ancienne-Lorette (Added June 17, 2002)

43. Cystic Fibrosis Research Directions Every year, 1,000 children with cystic fibrosis (CF) are born in theUnited States. One in 3,000 Caucasian babies have the disorder http://www.niddk.nih.gov/health/endo/pubs/cystic/cystic.htm

Symptoms of CF New Approaches to CF Treatment The Molecular Basis of CF Gene TherapyA Look Into the Future Every year, 1,000 children with cystic fibrosis (CF) are born in the United States. One in 3,000 Caucasian babies have the disorder, making CF one of the most common lethal genetic diseases in Caucasians. Overall, there are 30,000 Americans with CF, and an estimated 8 million people carry one copy of the defective gene that causes the disease. These carriers do not have symptoms of CF, because a person must inherit two defective gene copies-one from each parent-to develop the disease. However, each child of two CF carriers has a one in four chance of being born with CF. Genetic testing is now available to identify couples at risk for having children with CF. Improved therapy has transformed CF from a disease characterized by death in early childhood to a chronic illness, with most patients living to adulthood. But despite this progress, there still is no cure for the disease and most patients eventually succumb to infections of the airways and lung failure. Since the 1989 identification of the gene which is altered in CF, the pace of basic research has increased rapidly, and scientists hope to translate new knowledge about the molecular basis of the disease to new therapies to improve the lives of patients with this genetic disease. The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), in partnership with other components of the National Institutes of Health and the Cystic Fibrosis Foundation, continues to foster research on the molecular processes contributing to CF, exploration of gene therapy to cure the disease, and efforts to develop other new and effective treatments.

44. Mucomyst Indications Mucomyst Dosage Acetylcysteine - RxList Monographs Used to treat conditions resulting in thick mucus secretions such as chronic bronchitis and cystic fibrosis as well as an antidote to acetaminophen overdose. Includes liks to full prescribing. http://www.rxlist.com/cgi/generic3/acetylcysteine_ids.htm

Acetylcysteine RxPulse Industry Update: Claritin OTC Switch HEADLINES Please, take our 1 second survey! MEN'S HEALTH ... WEIGHT LOSS INDICATIONS As a Mucolytic Agent MUCOMYST is indicated as adjuvant therapy for patients with abnormal, viscid, or inspissated mucous secretions in such conditions as: Chronic bronchopulmonary disease (chronic emphysema, emphysema with bronchitis, chronic asthmatic bronchitis, tuberculosis, bronchiectasis and primary amyloidosis of the lung) Acute bronchopulmonary disease (pneumonia, bronchitis, tracheobronchitis) Pulmonary complications of cystic fibrosis Tracheostomy care Pulmonary complications associated with surgery Use during anesthesia Post-traumatic chest conditions Atelectasis due to mucous obstruction Diagnostic bronchial studies (bronchograms, bronchospirometry, and bronchial wedge catheterization) As An Antidote for Acetaminophen Overdose Acetylcysteine, administered orally, is indicated as an antidote to prevent or lessen hepatic injury which may occur following the ingestion of a potentially hepatotoxic quantity of acetaminophen.

45. NIDDK Centers . P30DK027651, Davis,Pamela, Case Western Reserve University, Core Centercystic fibrosis....... Gene Therapy and cystic fibrosis Centers http://www.niddk.nih.gov/fund/other/centers.htm

"You are now leaving the NIDDK website. The NIDDK is not responsible for the content of web pages found on this linked website. Links to nonfederal organizations are provided solely as a service to our users. These links do not indicate an endorsement of these organizations by NIDDK or the federal government." Quick Links for Investigators Office of the Director Extramural Activities Intramural Research Nutrition Research Coordination Office of Minority Health Research NIDDK Home Research Funding : NIDDK-Sponsored Research Centers NIDDK-Sponsored Research Centers Gene Therapy and Cystic Fibrosis Centers Diabetes and Endocrinology Research Centers Diabetes Research and Training Centers Hematology Centers ... Molecular Therapy Core Centers (Guidelines) *(pdf-320kb) Gene Therapy and Cystic Fibrosis Centers Description Davis, Pamela Case Western Reserve University Core CenterCystic Fibrosis Miller, Arthur University of Washington Core Center for Gene Therapy Wilson, James University of Pennsylvania Gene Therapy for Cystic Fibrosis and Other Genetic Diseases Engelhardt, John

46. Object Moved Information on this group of specialists for cystic fibrosis, NICU, growth disorders and other conditions. http://www.wuphysicians.com/pediatrics.shtml

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47. Canadian Cystic Fibrosis Foundation Works to raise funding for cystic fibrosis research and care, and lists upcoming events, describes the disease's symptoms and treatments. http://www.ccfftoronto.ca/

FIND OUT MORE ABOUT THE CCFF CLICK HERE OUR NEWSLETTER The Toronto & District Chapter publishes a quarterly newsletter with information on research updates, volunteer opportunities and tips for CF families. Click on " Become a Supporter " to find out how you can be added to our newsletter list. GET INVOLVED! Looking for a way to become involved in your community? Want to make a difference? CLICK HERE 65 ROSES GALA The 1st Annual 65 Roses Gala was held in June 2002. The Gala was a huge success raising vital funds for CF research. The 2nd Annual 65 Roses Gala will be held on May 31, 2003 at the Four Season Hotel. For more info, CLICK HERE SIEMENS CANADA RAISES $90,000 FOR CF Siemens Canada supports cystic fibrosis once again through their annual golf tournament. CLICK HERE LOOKING FOR VOLUNTEER OPPORTUNITIES? CLICK HERE for more information on volunteer opportunities ST. PATRICK'S DAY WALK A great way you can exercise and help raise funds for cystic fibrosis at the same time! It is 5km and you can either walk or run. Sunday March 16 , 2003. For more info, please email: adrianne@ccfftoronto.ca

48. Userdir Rule Failure The CysticFibrosis Index of OnLine Resources is intended to be an exhaustive guide toAll on-line Category Health Conditions and Diseases Support Groups...... http://vmsb.csd.mu.edu/~5418lukasr/cystic.html

The server was unable to resolve the requested /~ username reference, possible causes include: Username invalid Server is unable to determine username's login directory due to insufficient privilege to read the SYSUAF data.

49. Gateway Chapter, Cystic Fibrosis Foundation (St. Louis) Contact and service information. http://www.tenholder.net/gatewaycff/

Click the CD Player to the left to hear a 60 second sample of "One Heart at a Time" , a special song written exclusively for the Cystic Fibrosis Foundation. If you like the sound, click the CD Jacket on the right to read more about this CD and how you can add it to your collection. Learn more about the Great Strides Walk to Cure CF . . . click the button below this banner. About the Cystic Fibrosis Foundation The Cystic Fibrosis Foundation (CFF) was established in 1955 to raise money to find a cure for cystic fibrosis (CF) and to improve the quality of life for the 30,000 children and young adults with CF. The CFF puts funds to work as efficiently as possible; 90% of all money raised goes to CF research. The Gateway Chapter of the Cystic Fibrosis Foundation (Gateway CFF) raises money in the St. Louis, Missouri Metropolitan area, various locations throughout the state of Missouri, and St. Louis' neighboring counties in Western Illinois. Money raised by the Cystic Fibrosis Foundation supports: A network of multidisciplinary research and gene therapy centers at major universities across the United States.

50. HHCS - Your One Stop Pharmacy Center Provides services needed by person with cystic fibrosis, including medicines, equipment, information newsletter and links. Delivered to homes anywhere in world. Enroll form for completion. http://cfpharmacy.com

CF Pharmacy Services The CF Pharmacy is dedicated to research and development of a new cost-effective pharmaceutical approach to the care and treatment of Cystic Fibrosis. The CF Pharmacy is an independent pharmacy for patients and families (across the United States) formed specifically to meet the needs of CF patients. In addition to medications, The CF Pharmacy carries a full-line of respiratory equipment and supplies as well as nutritional supplements. CF PHARMACY SERVICES Complete outpatient prescription services All transplant medications Mail order pharmaceuticals available world-wide Specialty medications and supplies Dietary supplements Simple, convenient direct billing Competitive pricing Clinical research/cutting edge information I.V. medications and supplies for home infusion Medical equipment (i.e. nebulizers/vibrator-percussers) Compounding services for specialty items Unit-dose packaging Automatic monthly shipping upon request Disease management Genentech Endowment Center Diabetic medications and supplies Free newsletter (Informer) Most insurance companies accepted. We accept MasterCard, Visa, and Discover.

51. European Cystic Fibrosis Society ECFS, aims to achieve the best possible treatment and the highest quality of life for the patient Category Health Conditions and Diseases......EUROPEAN cystic fibrosis SOCIETY(ECFS). (formerly known as the European WorkingGroup for cystic fibrosis). European Thermatic Network for cystic fibrosis. http://www.ecfsoc.org/

EUROPEAN CYSTIC FIBROSIS SOCIETY(ECFS) (formerly known as the European Working Group for Cystic Fibrosis) Welcome To the ECFS Web Page Mission Statement: The ECFS aims to achieve the best possible treatment and the highest quality of life for the patient with cystic fibrosis by the development and distribution of knowledge in the field of cystic fibrosis The polymorphic nature of cystic fibrosis has resulted in the involvement of a large number of different clinical and scientific disciplines for the study and treatment of the disease. The European Cystic Fibrosis Society provides a European forum where such clinicians and scientists can meet, present and discuss the latest findings concerning the disease. Membership of the society is open to any clinician or scientist actively engaged in CF research or CF care. For genernal information or enquiries e-mail: info@ecfsoc.org fax: mail: European CF Society Hyrdebakken 246 DK-8800 Viborg Denmark The ECFS web page is managed on behalf of the Board of the ECFS by Dr H C Ryley (ryleyh@Cardiff.ac.uk) Index ECFS Home Page Society Details History The Board The Constitution Application for membership ... Previous Meetings Presentations.

52. Stichting Fibrose Kinderen Op Kamp De stichting Fibrose Kinderen Op Kamp is een uit particulier initiatief voortgekomen stichting, met als doelstelling vakantiekampen te organiseren voor kinderen en jongeren met cystic fibrosis (CF). http://www.stichtingfok.nl/

53. Cystic Fibrosis: What Is It? cystic fibrosis link, DNA Learning Center Link, Concept 1 Children resembletheir parents. Learn how Mendel worked out inheritance in pea plants. http://www.yourgenesyourhealth.org/ygyh/mason/ygyh.html?syndrome=cf

54. International Association Of Cystic Fibrosis Adults IACFA International association with the purpose of improving the quality of life of alladults with cystic fibrosis, by identifying common problems, enhancing the http://ourworld.compuserve.com/homepages/FAntognini/iacfa.htm

55. Charity Cycle From Lands End To John O'Groats A charity event to raise money in Aid of cystic fibrosis Holiday Fund For Children. A 1000mile trek on a Trident across the UK. http://www.3onabike.org.uk/

In Aid of Cystic Fibrosis Holiday Fund For Children Sponsor us by clicking here here...... NEWS FLASH********* Day 9 - They've Done It !!!!! The brave hearts arrive in John O'Groats at 18:15 today 27th July 2001 !!!! Well done lads !!! more news to follow.... Fastest and Youngest Ever - To be Ratified in 6 Weeks !!!!!!!!! Welcome to the charity cycle of the year.... From the sunny Southwest of England to the North-Eastern tip of Stormy Scotland, three friends will be riding one bike all the way. In ten days they aim to ride their triplet*Trident through headwinds, exhaustion and fantastic countryside, in aid of the Cystic Fibrosis Holiday Fund for Children. This is a real Gap-year challenge; few have ever completed the distance on this most unusual of machines. Who knows.... whether you live in Cornwall or the Cairngorms, you may even see them come flying (or panting) past your doorstep this July as they roll up the country................ Free Java applets provided by Website Abstraction sw="none";sd="none";ref=""+escape(document.referrer);

56. Welcome To The Cyber Campus. The Cyber Campus is a computer course aiming to empower and educate people with cystic fibrosis. From Category Health Conditions and Diseases cystic fibrosis...... http://www.internet-ireland.ie/horizon/

57. Boomer Esiason Cystic Fibrosis Foundation-Sponsoring Hope To Those Affected By C A resource for those affected by this disease. Includes details about the organization, fund raising, Category Health Conditions and Diseases Foundations......The Boomer Esiason Foundation was established in 1993 to fund research aimed atfinding a cure for cystic fibrosis, increase cystic fibrosis education and http://www.esiason.org/

Home Boomer's_Book_Club Boomer's_Book_of_the_Month_Club CF_Care_Centers_A-E Home Boomer's_Book_Club Boomer's_Book_of_the_Month_Club CF_Care_Centers_A-E ... Boomer's_Monday_Night_Football_Radio_Show

58. GNC Ultra Marathon North Park, Pittsburgh, PA is the site of the GNC 100K/50 Mile/50K Run. Fund raiser for cystic fibrosis research. Contains race information, results, and course details. http://gncrun.com/

59. Cystic Fibrosis Test what you know about cystic fibrosis. http://www.aarc.org/patient_education/iq_tests/cf/cf_form.html

The following statements test what you know about cystic fibrosis. Fill out the test by choosing true or false, then press the submit button. True False Cystic fibrosis (CF) is a hereditary disease. CF is more common in white children than in children of other races. As many as 30% of Americans of European descent carry the gene which is responsible for CF. The lungs are the only organs affected by CF. A person with CF may have difficulty keeping off excess weight. Treatment of CF has not changed much in the past twenty-five years. The gene responsible for CF has been identified. There is no way to tell if a newborn will get CF. Gene therapy is a standardized treatment for CF. People with CF require treatment only when they have an attack. Reviewed: August, 2002.

60. Boomer Esiason Cystic Fibrosis Foundation - We Sponsor Hope To Those Affected By KNOWLEDGE IS POWER! cystic fibrosis News cystic fibrosis includes detailedCF information, cystic fibrosis Outlook, What is cystic fibrosis? http://www.esiason.org/home.html

Boomer Esiason vowed to eliminate the threat of cystic fibrosis after his young son, Gunnar, was diagnosed with the disease in 1993. Boomer and his wife, Cheryl, are strongly committed to supporting this critical research to discover the cure for cystic fibrosis that they believe could be near. Please help us fight CF. Mission Statement The Boomer Esiason Foundation is a partnership of leaders in the medical and business communities joining with a committed core of volunteers to provide financial support to research aimed at finding a cure for cystic fibrosis. The Foundation works to heighten education and awareness of cystic fibrosis and to provide a better quality of life for those affected by cystic fibrosis. Make a Donation CF/BEF Highlights Cystic Fibrosis Boomer Esiason Foundation ... About BEF Site The United State Sports Academy has named Boomer Esiason this year's recipient of the Jackie Robinson Humanitarian Award. This award is presented annually to an individual who has demonstrated a concern for mankind. Boomer was selected for his dedication, compassion and dignity that characterizes the promotion of human welfare and social reform as demonstrated by his commitment to cystic fibrosis and those afflicted by the disease. Cystic Fibrosis News

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